The following is an email I just received from a satisfied user who is spreading the word in this way.
This is a return post that I sent to a member of my support group. I like my Sleep Genie™ and this is a way I can support your product without "spamming". He had just had a sleep study done and found out he kicked a lot. Perhaps he might try the Sleep Genie™ before getting the CPAP machine.
Pulmonary hypertension is a rare fatal disease where the blood pressure in the lungs is very high, making the heart work extremely hard. After a few years, the right side of the heart becomes enlarged and gives up.
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Hello Mike: I just read your post about your sleep study. I've had five of them, plus the narcolepsy one, so I'm old hat. I have both sleep apnea and narcolepsy and have been sleep deprived for many, many
years. It's been controlled fairly well with the CPAP, oxygen and Provigil (for the narcolepsy).
This is not medical advice, just sharing my thoughts with you. First, my husband has restless leg syndrome, which has driven him crazy for years. A sleep study confirmed it was sleep apnea even though he doesn't have the snoring, rattling of the lungs, breathlessness and cessation of breathing that I have. His feet and legs would start to feel "crawly" in the evenings and he would kick a lot during the night while he was sleeping. During the study, they hooked him up to a CPAP and he went right into REM sleep and stayed there--giving him his first good night's sleep in a long time. So now he's a firm believer in them and recently got a full-face mask that works best for him.
I would never be without mine either. It's made quite a difference for me and has eliminated the gurgling sounds that I made while I slept. My oxygen hooks on easily and I'm a happy camper with the set up.
There is a web site that I really recommend you look up. The article is called "Are you snoring yourself to death"? It explains the symptoms and causes of snoring in one of the best ways I've seen.
They also sell a product called Sleep Genie™ which keeps the mouth closed, thus preventing the tongue from falling back into the throat. I bought one because the ordinary chin straps never work that good,
or very long.
I like the device and would recommend it. If a person can't or won't do the sleep study for some reason, or if it's not clear-cut sleep apnea, then the Sleep Genie™ might just do the trick. I don't know if
EVERYONE would need the positive air pressure from a CPAP, but this device wouldn't hurt anyone and could provide lots of help to many.
Even though I have a CPAP mask, it was hard to keep it adjusted through the night as I moved around. It would leak in different places. My mouth would come open because the thin little chin straps wouldn't keep
it closed very long. Wearing the Sleep Genie™ under the CPAP headgear has helped keep the mask more secure without my having to make the straps extra tight and leaving marks on my face. I know I get a better
night's sleep with it than I did with the CPAP alone.
I don't have any financial interest in this company and am not "pushing" a product for any self gain. I am just a fellow pulmonary hypertension and COPDer who wants to share a good product I've found.
Linda Brown
CO